, , Myositis
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Hi there, Kathleen, now that my daughter is almost 18 she has experienced the entire spectrum of emotions throughout her life and my illness. She has experienced resentment and anger at my illness, and me, gone through the stages of grief, and has continued to be very helpful and loving at other times, even though, as Jerry mentioned, we have given her room to talk and express herself throughout her life. I don’t think there is any feeling that is unnatural for a child of any age when a parent is sick. I certainly feel all the feelings myself. I hope your family members are able to get support.
Emily
Hi Kathleen – Thank you for your comment. I am sorry to hear your daughter’s kids are angry and resentful. I so wish more people would understand what it’s like to live with myositis even when we may not “look sick.” As for Mrs. Filmore, her daughter grew up with her mom sick and she really talked to her about it throughout her life. So I think the experiences may be different. We are here for you. We have so many support groups so I hope you will join us to talk about these things. Wishing you the best!
Another DM sufferer, our daughter’s grown children(girls: 26, 23,21), are angry and resentful. Is this similar to Ma.Filmore’s experience?
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