Caregivers, your life has changed, too
Author: Emily Filmore
Emily A. Filmore is an author, speaker, and is one of the founding board members of Myositis Support and Understanding Association. She wrote "The Marvelous Transformation: Living Well with Autoimmune Disease" about her experiences with dermatomyositis and other chronic illness (Central Recovery Press 2015), the "With My Child" series of children's books about family bonding (Withmychildseries.com), is the co-author of "Conversations with God for Parents" with Neale Donald Walsch and Laurie Lankins Farley. (Rainbow Ridge, 2015), and co-author of “Parenting through Divinity” with Laurie Lankins Farley (due for release in 2018 through the Waterside imprint).
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It is amazing how the lives of our families and even our friends are affected by our Myositis and related autoimmune diseases. Some do not know what to say or do or how to act so they may not “act concerned” when inside, they truly are.
This article is excellent for those people. We want them to know that they can talk to us about our weakness, fatigue and our pain, emotional and physical. Living with Myositis, at times, can seem like the end of the world, and with the support and love of family and friends, it does make it easier. WE love you for all you do!!! Happy Caregivers Month!