Earn donations to Myositis Support and Understanding Association at no added cost to you by using goodshop.
Top-Rated Nonprofit
© 2026 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.
Thank you this was so helpful when trying to explain to friends and family. I was diagnosed with NAM 4 years ago and have relapsed twice taking me to 100 % bed ridden. Having 24 hr care and learning to walk, talk, sit, stand, swallow, shower, comb my own hair, feed myself, pick up a cup to drink out of and go to restroom by myself. I thank you from the bottom of my heart.
this is the best thing i have ever read it exactly explains my feelings, thoughts and struggles with the disease and people understanding. somehow it made me feel a bit relaxed where i’m in a region PM is very rare and no one to talk to. thank you so much