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Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

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2 Comments
  1. Jerry Williams 2 years ago

    Hi Amy and thank you so much for your kind words about MSU. We appreciate your continued support and hope you will continue to spread the word.

    Our pain research was based on my experience with myositis pain and the tremendous suffering I experienced but shouldn’t have had to. I finally found palliative care and I now have stable pain control. I am so glad that Emily Filmore was my support and co-founder of the study that led to the publication. It’s really an amazing story of how it all came to be including Lynn Wilson, Manuel Lubinus, Dr. Salman Bhai, and others. Thanks for the recognition! Big hugs!

  2. Amy Portmore 2 years ago

    MSU is a tremendous organization. The support it offers is outstanding.
    As well, the research and publication on pain in myositis is outstanding in and of itself. And that a community based support organization would do it so well, using standard scientific approach, such that it could be published in a prominent medical journal- outstanding!
    Amy Portmore, MD
    Physician and Myositis Patient

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© 2026 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.

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