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Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

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5 Comments
  1. Thomas Riley 4 years ago

    a HI Jerry
    I a been trying to send you message in reply to your message to me last week, no luck, I ambterribleam terrible with this android phone computer! You explained my daily struggles so well borrowing pennies of tomorrow to get thru constant legs muscles 24/7 calves & hamstrings both legs! My doctor cut pain meds when my pain levels us increasing, cold weather, muscle weakness, I took a fall at home not hurt just very stressed not able to get up & very difficult a good friend Dan & my wife get me unto my bed & then I can get up on my feet on my own.
    I need a new pain management doctor close to my home in Huntington Station NY that knows how to treat IBM muscle pain & my regular physician for 20yrs just retired needs replacement knowledge if IBM is close to home, tuff traveling.
    I have Dr. McWilliams neurologist 20 miles away at Saint Charles Specialty Care Unit, I do Zoom with him he is wonderful has 2 IBM PATIENTS MY AGE MAKE & FEMALE ON GRAMAGAURD HE HAS PRESCRIBED FOR ME WAITING ON APPROVAL. THANK YOU JERRY! TOM

  2. Thomas Riley 4 years ago

    a HI Jerry
    I a been trying to send you message in reply to your message to me last week, no luck, I ambterribleam terrible with this android phone computer! You explained my daily struggles so well borrowing pennies of tomorrow to get thru constant legs muscles 24/7 calves & hamstrings both legs! My doctor cutting pain meds when my pain level us increasing, cold weather, muscle weakness, I took a fall at home not hurt just very stressful not able to get up & very difficult a good friend Dan & my wife get me unto my bed & then I can get up on my feet on my own.
    I need a bew pain management doctor close to my home in Huntington Station NY that know how to treat IBM muscle pain & my regular physician for 20yrs just retired need replacement knowledge if IBM close to home, tuff traveling.
    I have Dr. McWilliams neurologist 20 miles away at Saint Charles Specialty Care Unit, I do Zoom with him he is wonderful has 2 IBM PATIENTS MY AGE MAKE & FEMALE ON GRAMAGAURD HE HAS PRESCRIBED FOR ME WAITING ON APPROVAL. THANK YOU JERRY! TOM

  3. Thomas Riley 4 years ago

    a HI Jerry
    I a been trying to send you message in reply to your message to me last week, no luck, I ambterribleam terrible with this android phone computer! You explained my daily struggles so well borrowing pennies of tomorrow to get thru constant legs muscles 24/7 calves & hamstrings both legs! My doctor cutting pain meds when my pain level us increasing, cold weather, muscle weakness, I took a fall at home not hurt just very stressful not able to get up & very difficult a good friend Dan & my wife get me unto my bed & then I can get up on my feet on my own.
    I need a bew pain management doctor close to my home in Huntington Station NY that know how to treat IBM muscle pain & my regular physician for 20yrs just retired need replacement knowledge if IBM close to home, tuff traveling.
    I have Dr. McWilliams neurologist 20 miles away at Saint Charles Specialty Care Unit, I do Zoom with him he is wonderful has 2 IBM PATIENTS MY AGE MAKE & FEMALE ON GRAMAGAURD HE

  4. Brenda 6 years ago

    This is the absolute best explanation I’ve ever come across. It takes into account the “short-changed” for no reason days. The likely outcome of over “spending,” and how you never can tell what kind or how much your ‘budget’ will be on any given day. And that pain days are another line item altogether.

    Very helpful. Thank you for sharing!

  5. Jerry Williams 13 years ago

    I just absolutely love how Jerry Young explains a great way for us to explain to our family and friends how much energy it takes for us to do simple things they may not realize and how if we do go overboard, we certainly pay a price; whether it is pain, extreme fatigue or worse. Thanks for sharing this with us Jerry!

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