New Study for Patients with IBM at Yale
Author: Myositis Support
Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.
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Hi James and thank you for sharing some of your difficult story of living with IBM. Be sure to register for your free membership with us to ensure you receive all email updates. You can register at http://www.Understandingmyositis.org/register or by clicking Register at the top right of the page. Wishing you the very best.
I AM 69 AND HAVE BEEN IN A WHEEL CHAIR FOR 9 YEARS WITH IBM. I HAD BIOPSY IN 2007 TO DETERMINE WHY I HAD BEEN FALLING, LOSING MUSCLE AND IN GENERAL NOT BEING ABLE TO PERFORM MY MARITAL DUTIES. THESE SYMPTOMS STARTED 6 YEARS BEFOR I KNEW WHAT THE PROBLEM WAS AND I BELIEVE THEY STARTED WHEN I WAS 17 YEARS OLD IN BOOT CAMP. there I NEEDED BARS IN MY BOOTS TO KEEP THE METHEAD OF MY FEET FROM THE PRESURE OF MY BOOT ( NEVER PROVIDED) AND LATER MY ANKLE WOULD TURN FROM STEPPING ON A SMALL PEBBLE. NOT I HAVE INVERTED FEET, HAVE LOST 2 TOES DURE TO SORE INFECTIONS , HAD A KNEE OPERATED ON DUE TO INFECTION( THE MUSCLE NEVER HEALED RIGHT AND THAT WAS THE LAST STARW THAT PUT ME IN THE CHAIR. I WOULD LOVE TO BE IN YOUR STUDY.
Hi Josef. Thank you. Be sure to register for your free membership with us to ensure you receive all email updates. Understandingmyositis.org/register
Ladies and gentlemen,
I call Józef Wojciech Planeta, I’m 61 years old and I suffer from IBM. If the distance, ie the fact of living in Poland, is not an obstacle to participate in the project, I declare my willingness to participate. My email address wplaneta@poczta.onet.pl. I really count on any answer.
Sincerely.
Józef Wojciech Planeta