Manuel Lubinus, MBA, Ph.D. appointed as Patient-Centric Research Advisor
Author: Myositis Support
Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.
View more information: Myositis Support









Congratulations Manuel! We appreciate your time and commitment to further the patient centric research for IBM. Like you said it is a difficult fight to fight a rare disease and community’s support is so crucial. My husband was diagnosed with IBM in 2016 and now he is dealing with lot more issues, it is very difficult to see him go through this. I would like to be involved in some way to help build up the community support. I have a Masters degree in Molecular Biology and I can follow some of the research happening in this area. I would like you to advice me how can I be of any help. Thanks!
Welcome, @manuel94! We are grateful for your determination, and your expertise and time, to help move forward patient-centric research using a collaborative approach. The time is now. Glad to have you on the team!