, , Personal Stories
, , Personal Stories
, , Personal Stories
Earn donations to Myositis Support and Understanding Association at no added cost to you by using goodshop.
Top-Rated Nonprofit
© 2026 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.
Maureen,I so enjoy reading you’re blog.I also have IBM.It’s great that you are willing to tell you’re story.No telling how many others it could help.Best Wishes and keep up the blogs.Friend
ThanksTerre, just one step at a time,I used not to be a positive person ,now I have found an inner strength from somewhere that keeps me going and I do believe having all my Polymyowhat friends help ! Also my two wonderful Physios keep me in check and are so understanding ! My faith has also been a very big part in my journey. Even if I don’t go to church I say my prayers and feel grateful always thank him and I get some amazing strength and courage to! My dear carer husband gives me encouragement while not being pushy lets me try things to see if I can manage or not,he has a heavy load now I’m afraid. I hope you are travelling well Terre and prayers and hugs xx
So grateful for those that share their journey w/a Myositis condition. Yours was courageous and inspirational. Beautiful that you have a loving family that cares. Think when I get to the point of a wheelchair I would probably stare at it until I had to succumb to as well. You seem very determined to live life to its fullest and being happy; that’s what inspires me.