Adventures with Polymyositis: My experiences and what I’ve learned

Home Adventures with Polymyositis: My experiences and what I’ve learned

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Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

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4 Comments
  1. Loan Anh 4 years ago

    I’ve recenty been diagnosed with Polymyositis after contracting Covid 19 and your post has gave me a lot of hope, thank you!

  2. Caroline 8 years ago

    Thanks for the hope Sandy. I was diagnosed with PM at 44 and after a year and a bit on prednisilone and methotrexate, I am struggling to see any improvements in my thigh strength despite doing physio for 6 months now. But if you can do it, maybe I can too!

  3. Jerry Whitt 9 years ago

    Sandy,

    Thanks for sharing your great story.

  4. Jerry Williams 10 years ago

    Such great tips! Thank you.

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