Young adults living with rare diseases have many unmet needs and many life decisions that can be impacted by...
Join MSU in celebrating Rare Disease Day, Feb. 28th, and Rare Disease Week on Capitol Hill. We are also...
It has been a busy and productive year for MSU. We are sorry so many are still suffering from...
Learn more about Rose's experience on Capitol Hill during Rare Disease Week 2017. Find helpful links to Advocacy organizations...
You are rare! Yes, you, living with Polymyositis, Dermatomyositis, Inclusion Body Myositis, and Juvenile Myositis. Our caregivers, you, too,...
Simply stated, an “orphan disease,” sometimes called a “rare disease,” describes one of more of 7,000 diseases affecting relatively...
It was an exciting day in the State of Delaware Tuesday, September 2nd. I had the honor to meet...
