Immunoglobulin (IG) Shortage
Author: Myositis Support
Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.
View more information: Myositis Support
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Pain Is Not a Four-Letter Word
Myositis Support, , Featured, Video
This introduction to pain management will cover what chronic pain is and isn’t, different types of pain and their...
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Prednisone Withdrawal
Myositis Support, , Myositis Treatments
Prednisone Withdrawal: As a patient with #myositis, you are likely on, or have been on, prednisone at some point....
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Disability and Invisible Illness: Interview with an Attorney
Myositis Support, , Autoimmune Disease, Healthcare Tips, Video
Disability and Invisible Illness An Interview with Attorney, Anthony Castelli SSA disability and invisible illness. An interview by Celeste...
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MSU’s evolving plans for supporting the myositis community during the COVID-19 pandemic
Myositis Support, , Featured, Healthcare Tips, News
In light of the Coronavirus (COVID-19) worldwide pandemic Myositis Support and Understanding (MSU) will be shifting our focus to...
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Experience of pain and fatigue in adult idiopathic inflammatory myopathies (IIM)
Myositis Support, , Featured, News, Video
Watch the video, "Experience of pain and fatigue in adult idiopathic inflammatory myopathies (IIM)" with Helene Alexanderson, Ph.D. with...
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Interview with Author, Emily Filmore
Jerry Williams, , News
Today Jerry Williams, founder and president of MSU, is interviewing our very own, Emily Filmore. She is an MSU...
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Myositis Awareness Month, May 2019
Myositis Support, , #MyositisLIFE, News
May is Myositis Awareness Month and we want to introduce our brand new website where your experiences get the...
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FDA grants Orphazyme drug arimoclomol orphan drug designation in the U.S.
Myositis Support, , Inclusion Body Myositis (IBM), News
Orphazyme A/S, a Danish biotech company with a late-stage orphan drug pipeline, today announced that the U.S. Food and...














