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Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

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2 Comments
  1. Jerry Williams 6 years ago

    Hi Lizzy. That is a great question. We would suggest discussing that with your physician and an attorney (if needed). It is a topic we could address during our live webinar Tuesday at 2 PM ET if you are able to join.

  2. Lizzy 6 years ago

    Hi! Great resources. I have a question about Advance Care Directives. Mine currently states that I don’t want to go on a ventilator. Given CV treatment often ends in a ventilator, where can I get some thoughts and advice and guidance on updating my ACD – what are the chances of coming off the vent? This is my main worry at the moment…

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